Interesting day…

They are reducing medications and Raena’s heart rate and BP have been consistently high today. Her ICP levels has stayed around 15 which is good.

She is still spiking,  which now they refer to it as storming,  they called it sympathetic storming. This is due to brain trauma. Friday will be a big day. They want to do another CT scan to check her swelling as well as turn off most of her meds and do a few tests on her,  including another EEG monitoring. They want to see what is going on with these episodes and to see how her brain waves look without all the medications.

I have mixed feelings about trying to bring her out of the coma,  but she has also been in this coma for 10 days now. She has lost a lot of weight also, so I hope they can give her nutrients to help her body gain weight.

4 thoughts on “Interesting day…”

  1. Hi Steven and family. Raena and you all have been in my thoughts every day. I continue to pray for you all. I hope today brings more answers. You all are unbelievabley strong.

  2. Continued prayers and positive energy your way. We miss Raena so much. Thank you for the continuous updates. Lisa and Emma

  3. We are good friends of Karen & Ricky Matsui. We have Raena in our thoughts & prayers. Steven & Nikki, we have never met you but please know that we are thinking of you every day. Miracles happen and prayers get answered; I believe that. I worked as a social worker in the hospital so I used to see it often. Children are resilient. Take care and try to get rest (easier said than done, right?) Thank you for setting up the updates.

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